Three brave people venture from their home sweet homes to stay with the one they love.
It's really hard for me to watch Bekha's story specifically, i have Spastic Cerebral Palsy which is a condition that affects my brain and the way i walk, i know how hard it is to not walk like everyone else and to have to do muscle strength exercises daily . My condition is not curable but i can have limited corrective surgery. I am almost 17 and just had my fifth leg surgery this past summer. They are all extremely strong people!
Name is Sean. Im 30 and have NF. Mine is a genetic mutation meaning no one in my family has it. My son was born ok as well. TY for this episode. We need more awareness.
I have NF and I have met Phil at a summer camp for people with this disorder. I have made some of my best friends there. One of which passed away 2 years ago due to complications with NF. I miss him dearly. It's not easy having this and it gets worse with age.
I feel so bad, why would anyone make fun of these guys? There nice.
there different people out there
Why can't I see this video in my Region? A few Months ago I could see it, no i can't. I come from Holland and I wanted to use this video for awareness and education.
I'm in complete awe and admiration for each of these young adults! Their positive outlook on life is infectious and inspiring! Philip is possibly the most enduring young man I've ever seen with such a great sense of humor, what a gem! Amber just radiates joy! Her complete self acceptance and love for who she is, is so beautiful! Bekha WOW what an amazing girl! She has super natural strength to cope with such heavy loss, and decisions. Her perseverance is something I've never seen before! AMAZING
I really like this show and I am glad that MTV did this, now the next thing to happen is FINDING A CURE!!!
NF can can cause tumors like that BUT some people just have the cafe au lait spots, Some tumors are on optical nerves and in there brains. You never know if the person standing right next to you has it.
Yes very true. My daughter is 15 months old and so far all she has is the Cafe au lait spots, she has an MRI soon tho to check for tumors.
I never really knew what NF was until watching this episode. All 3 of them are much stronger than I could ever be. I am truly inspired by their stories.
On a lighter note--
Bekha totally smacked and grabbed the hot doctor's butt (18:14) to catch her fall. So jealous. lol
I have NF and I just had my 4th surgery to remove the NF tumors and a few months I will be going for my 5th after I talk to my surgeon again about what he will do. my brother and sister have it too. I have only ever told my good friends about having NF, cause I don't want to be treated different cause I have NF
they make fun me before they knew bout it..after they knew they felt bad even straight up bullys ended up be a good friend of mine by the time i was a senior n hs
if i ever noticed someone making fun of these NF people I'd DECK THEM right in the face.
All of them really touched me, and it hurt to see what they were going through in this particular episode. They are all truly an inspiration, and are so strong to get through NF. They've come to accept it when others who are spoiled and take life and things for granted continually complain about almost every little petty thing.
How could a person make fun of people with NF? I do not have NF but I would understand that people with NF did not wish NF on themselves, and that they can't do that much to conceal the tumors besides surgery. How can some people be so heartless... smh
hi my name is Lynn. i have NF my sister and brother have it too . not all people who have NF have tumors. most people who have NF have cafe la spots. i have cafe la spots. i feel different from people becuse i have cafe la spots . Not everyone knows what NF is ? we just the same person as you are we just different from you
I can. I see it as people just don't care. If it's not directly effecting them or their family members they figure they can say or do whatever they want.
they just do.. i have it though i may not look like it... i have a spot on my back known as cafe oh lait and i have to get it removed before it can turn into cancer
Im 20 years old, i also have nf 1, i have younger brother who doesnt have it. I was passed down to me from my dad and from his mom. I can feel for phillp i have a tumor growing on chin, i got it removed before but it keeps growing back. im considering myslef blessed i am able to walk and see and im okay. people who have any type of nf are people too. i have the spots all over my body. i have tumors on my one leg so it make wearing shorts and dresses embrassing im always afrid people are looking at my face or my legs and just talking behind my back. but i just live for the next day. i have a family who loves me, i just told my boyfriend that i have nf, weve talked about having kids. but im not sure i want my kids to have to go thro what i did. but like it says i just wanna be normal, i wanna not to wear makeup to cover things and wear pants and a swaeter all the time to hide my imperfections. my boyfirend tells me im pretty but when i look in the mirior i dont think so. it is tough living with nf but having people around who love me it helps get me alot