Three brave people venture from their home sweet homes to stay with the one they love.
I'm in complete awe and admiration for each of these young adults! Their positive outlook on life is infectious and inspiring! Philip is possibly the most enduring young man I've ever seen with such a great sense of humor, what a gem! Amber just radiates joy! Her complete self acceptance and love for who she is, is so beautiful! Bekha WOW what an amazing girl! She has super natural strength to cope with such heavy loss, and decisions. Her perseverance is something I've never seen before! AMAZING
I really like this show and I am glad that MTV did this, now the next thing to happen is FINDING A CURE!!!
NF can can cause tumors like that BUT some people just have the cafe au lait spots, Some tumors are on optical nerves and in there brains. You never know if the person standing right next to you has it.
Yes very true. My daughter is 15 months old and so far all she has is the Cafe au lait spots, she has an MRI soon tho to check for tumors.
I never really knew what NF was until watching this episode. All 3 of them are much stronger than I could ever be. I am truly inspired by their stories. On a lighter note-- Bekha totally smacked and grabbed the hot doctor's butt (18:14) to catch her fall. So jealous. lol
I have NF and I just had my 4th surgery to remove the NF tumors and a few months I will be going for my 5th after I talk to my surgeon again about what he will do. my brother and sister have it too. I have only ever told my good friends about having NF, cause I don't want to be treated different cause I have NF
they make fun me before they knew bout it..after they knew they felt bad even straight up bullys ended up be a good friend of mine by the time i was a senior n hs
if i ever noticed someone making fun of these NF people I'd DECK THEM right in the face.
All of them really touched me, and it hurt to see what they were going through in this particular episode. They are all truly an inspiration, and are so strong to get through NF. They've come to accept it when others who are spoiled and take life and things for granted continually complain about almost every little petty thing.
How could a person make fun of people with NF? I do not have NF but I would understand that people with NF did not wish NF on themselves, and that they can't do that much to conceal the tumors besides surgery. How can some people be so heartless... smh
hi my name is Lynn. i have NF my sister and brother have it too . not all people who have NF have tumors. most people who have NF have cafe la spots. i have cafe la spots. i feel different from people becuse i have cafe la spots . Not everyone knows what NF is ? we just the same person as you are we just different from you
I can. I see it as people just don't care. If it's not directly effecting them or their family members they figure they can say or do whatever they want.
they just do.. i have it though i may not look like it... i have a spot on my back known as cafe oh lait and i have to get it removed before it can turn into cancer
Im 20 years old, i also have nf 1, i have younger brother who doesnt have it. I was passed down to me from my dad and from his mom. I can feel for phillp i have a tumor growing on chin, i got it removed before but it keeps growing back. im considering myslef blessed i am able to walk and see and im okay. people who have any type of nf are people too. i have the spots all over my body. i have tumors on my one leg so it make wearing shorts and dresses embrassing im always afrid people are looking at my face or my legs and just talking behind my back. but i just live for the next day. i have a family who loves me, i just told my boyfriend that i have nf, weve talked about having kids. but im not sure i want my kids to have to go thro what i did. but like it says i just wanna be normal, i wanna not to wear makeup to cover things and wear pants and a swaeter all the time to hide my imperfections. my boyfirend tells me im pretty but when i look in the mirior i dont think so. it is tough living with nf but having people around who love me it helps get me alot
I cant believe they said people make fun of them. How can people make fun of someone suffering and already selfconsious without any comments??
i was born with NF 1.. I'm the very first in my family to have it. My husband and I had our first son in June 2010 he is 9 months old and was diagnosed with it at 3 months. We are currently pregnant again with another little boy due in July. Please feel free to add me on FB if you like! Plz put in the message area that you got me from MTV.NF or something. ;)
I was shocked to see that MTV did a special on NF. I was born with NF, I got it from my dad. It was not great growing up with NF. My only external symptoms are several large and small cafe au lait spots...leading to the nicname, "dalmation girl", and "reverse michael jackson". I also have a cluster of fibromas on the inside of my elbows that is commonly mistaken for a drug related mark. I also have tumors growing inside my body, one on my spine, and one on the base of my brain. I live with persistent back pain because of them. Hopefully now that I have amazing insurance, I should be getting in removed soon...I actually see a surgeon this week. I thank MTV for bringing awareness to the disease. There are to many people in my life who didnt understand how serious it can be.
Aww that's so sad. My heart goes out to these people.
my name is Nicci i am fromn atlanta,ga im rewatching this for the first time since it debuted. im very happy and touched that true life did a documentary on this. i was born with nf1 and have been dealing with it for 30 years now. i was picked on growin up bc of it and i still as an adult have people who question me about it .i getti asked it i was hit etc. i have a tumor/nuerofibroma on my optic nerve on the right side of my head. it is very obvious so i have taken to wearing my hair long to cover it. i also have a small neurofibroma above my right eye. there are days where i feel like the ugliest person on the face on the earth. i have luckily met a man who has made it a point to try and make me feel like i am beautiful. i have though about surgery but there's a chance i could lose my sight if i go through with it. there are days i am in pain and i have ringing in my ears.i got nf fr4om my birthfather who from what i am told unfortunately had a couple of malignant tumors from his nf. i am not aware if he is alive or not as i am adopted. i am self conscious all the time even when i don't show it. and for years it was hard for me to ever fully explain what i deal with on a day to day basis..so i was glad when this debuted so i could share with friends what it was like for me . i have yet to meet another individual with nf in person. i have made friends on facebooks groups but never met any of them yet. i did one day meet a man at my work who's daughter has it and it was a very overwelhming to be able to talk to someone in person about it. i have done some ametuer modeling for local photographers which has helped alot with my confidence...but i do ask find myself asking everyday why me? i hate eling that selfsih but its just the nature of the beat i guess. i have had one child who luckily did not have nf passed on to him from what we have seen. i am thankful for that. im very sorry if this all seems scatered im a little emotional.
Words cannot describe how proud i am of all of you. Reading your comments and hearing about your stories and seeing theirs brings tears and joy to me. I don't have NF nor would I know what it's like to live with it. What I do know is how much strength and courage you have that I would never have. Again I am beyond proud of all of you. To the people in the show. You all have given an amazing lesson to us and I thank you from the bottom of my heart for showing me and teaching me all you have. Bekah, You are one of the most courageous women I had seen and to take that risk was mind blowing and i can't imagine the feeling you had before and after surgery, God took care of you sweetie. Seeing you're independence made me so happy and I cried with you. Philip. You are a very handsome young man and you are amazingly funny and outgoing, I can see how happy you are and how extraordinarily heartwarming your presence is. Watching you in the show was very cool, to bad there aren't such gentleman like you out there. I loved how energetic you were and seeing you dance :) Amber. You are what every woman should be, beautiful, courageous and have a beautiful heart. You show that you won't let something like NF ruin your life. Seeing you throught the show made me happy. Seeing all three of your stories, I cried not because i was sad, or scared for the risks you took and emotions you have felt but because you show us what amazing people are and that there are people out there that have their own struggle, maybe not like ours but you overcame it beyond. Thank you for sharing your stories. God Bless!
