True Life | I Have Narcolepsy

True Life
I Have Narcolepsy

Posted 11/5/11
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Julie and Katie are two young people whose lives revolve around managing Narcolepsy. As they make decisions about medication and relationships, they seek support from their friends and family.

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Lynny (5/27/2012 6:03:09 PM)

I feel bad for Julie, because she looks like she is kidding around when she laughs and falls down and giggles on the floor. People just give her these looks like she is purposefully seeking out attention by faking it. I'm very glad I watched this episode because I want to be open minded with everyone, and I would hate to make people like Julie feel uncomfortable when they can't help it.

Lauren (5/21/2012 10:23:44 AM)

It is hereditary. But some people can get it without a trace in their family.

Ashley (3/29/2012 8:58:13 AM)

robby she has narcolepsy stop being a baby she cant help it jack ass

Ashley (3/29/2012 8:45:18 AM)

one and a half of adderal isnt bad and shewasnt snappy robby u jus didnt sleep000a

Gaby (3/25/2012 11:59:11 PM)

i agreee with you drama rama i think they do have the medical condition but over do it well that julie chick and aliyzsa chick drama!!! i believe alyssa chick probably has it but not as bad same with julie sleeping chick.

xxstacey101xx (3/24/2012 12:04:33 AM)

but...shes taking 12 times what people usually take and its causing her sign affects, her heart can give out any time cause of how much she is taking.

xxstacey101xx (3/24/2012 12:03:10 AM)

Agree with Perla

Kayla (3/3/2012 4:52:02 PM)

So, anyone can get narcolepsy? It's not hereditary or anything? 000aThat's kinda scary :/

Melissa (3/1/2012 12:59:30 PM)

What kind of accent is Katy speaking w/?

Hannah (2/6/2012 1:23:22 PM)

I'm confused with the way Katy talks. She sounds like a British American with a speech impediment. Not making fun but it's just kinda strange

Hannah (2/6/2012 1:22:07 PM)

I'm confused about Katy's accent. She sounds British sometimes and American sometimes. But some of her words sound like neither, almost like a speech impediment

Perla (2/4/2012 11:08:24 AM)

Ellen your an idiot . and your ignorant. People with narcolepsy with cataplexy do actually fall down not because they want to . Do your research you idiot ,ignorant little runt.

sarahmarie43 (2/1/2012 10:50:17 AM)

Agreed. And there is NO MEDICAL EVIDENCE that your heart only has "so many ticks". I don't know one cardiologist who believes that. Adderall will NOT SHORTEN LIFE. Robbie is not a doctor and needs to learn more about her condition before he tries telling her what to do.

Facebook User (1/23/2012 1:21:21 PM)

One to any of the people that want to say these people are faking it, please go through being a narcoleptic for one day! & to mtv thank you for making narcolepsy look like this considering this is not what every narcoleptic goes through. if you were going to do the show like this you should have named it Narcolepsy with cataplexy not just Narcolepsy. I have narcolepsy with out cataplexy and i have other certain things i go through. i'm very disappointed in mtv and viewers that are judging.

Miss (1/21/2012 6:11:15 PM)

Thanks for replying :) will Most def. check out ur blog and will email you. would be nice to have someone like me to talk to!! :)

Julie (1/20/2012 11:56:57 AM)

@Machel Twenty years, I can't even imagine! It's bizarre for me to think that it's just been nearly a year since I was even diagnosed lol. I'm glad to hear that you still laugh despite the risks. Laughter as a cataplexy trigger is like a sick joke lol. The "narcaplexics" I know laugh even more than my other friends. Maybe it's because we can value the ability to laugh and we don't take it for granted? Lol who knows, I'd rather laugh and have to fight off my weakness than not at all!

Julie (1/20/2012 11:44:21 AM)

@felicityjain Sounds like you have your "narcaplexy" (my word for when we have both N&C haha) under control--that's great! I totally agree about there needs to be more research. Currently Stanford University is the leader in research but with such a small amount of people affected it's a slow process. A great thing is they post their findings so you can always check their website if you want to see what's being done, and even contribute. http://med.stanford.edu/school/Psychiatry/narcolepsy/

Julie (1/20/2012 11:37:55 AM)

@POWERofthePRETTY I'll give you my answer too :) People always chuckle a bit but they know more about it now to understand what's happening to me. The worse culprit is my mom actually--she can't help but laugh when I have cataplexy attacks which makes me even worse lol. My friends are so used to it now that they don't say anything about it but keep a close eye on me in case I need them. They're really great; I don't know what I'd do without them!

Julie (1/20/2012 11:30:13 AM)

@Miss Yes, I was extremely lucky to find out so early and not have to suffer in confusion for years like so many other people do. There are a lot of treatments out there, everything from medication to chiropractic care and I've even talked to a young teen who stops her attacks with a little inhaler of oxygen she carries with her! Definitely don't stop trying to find the right combination of treatments for you. And you can always talk to me if you'd like! :) www.narcaplexy.blogspot.com

Natalie (1/16/2012 11:11:05 AM)

It just really frustrates me that on top of all the medical problems you have to deal with, you also have to defend yourself against people like that. So try not to let it bother you - for every person who is ignorant about it, there will be someone willing to help you and understand you.

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